DOI: https://doi.org/10.25040/medicallaw2018.01.065
Med. pravo., 2018; 1(21): 65-74
UDС: 340
TERZI OLENA OLEKSANDRIVNA
candidate of legal sciences, senior lecturer of the department of philosophy and bioethics of the Odesa National Medical University
Predictive Medicine: Right to Confidentiality and Protection Against Discrimination
This article is devoted to questions of protecting the right to confidentiality
in the implementation of predicative medicine. The article deals with the
consolidation of this right at the national and international level. The
issue of genetic discrimination and the regulation of the prohibition of such
discrimination at the national, international and CIS level was explored. The
approaches to solving the problem of the use of genetic information in the
field of insurance in such countries as Belgium, the Netherlands, Portugal,
the United Kingdom, the USA, Canada are analyzed.
Genetic data makes it possible to predict the future health status of a
healthy person at the time of the survey with a high probability and can
therefore be used as grounds for discrimination in the use of third parties.
The question of the protection of personality, physical and intellectual
integrity of a person in the conditions of the progress of biology, medicine
and biochemistry has repeatedly become the subject of consideration in the
reports of the Secretary-General of the United Nationsand the World Health
Organization.
The purpose of the article is to analyze the right regulation of predictive
medicine through research in this context the right to privacy and protection
against discrimination. As predicative medicine is a rather new branch of medicine, there is currently no single regulatory framework for regulation of relations in this area. Commissions and advisory bodies of international organizationsare trying to codify the ethical evaluation of genetic tests in their recommendations. At present, the government is responsible for combating genetic discrimination and the threat of genetic confidentiality.
Key words: predictive medicine, genetic data, confidentiality, genetic
discrimination, insurance.
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